Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


24 December 2021

Merry Christmas

Well it’s been an eventful 2 years with covid!   I’ve had my two covid jabs and recently the booster with any luck next year will b better I’ve got a lot to look forward to in 2022 I’ve got my cochlear implants upgrade to Kanso 2 which I’m looking forward to! And lots more lily get togethers COVID permitting! 

 Merry Christmas and a happy new year 


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