last week i went to newcastle hospital to do a sleep study and EEG as i am having trouble with my short term memory loss prof Turrnbull said it was part of my mitochondrial disease RRM2B.
so that night in the hotel i did my sleep study witch was a gadget on my wrist and we were to drop it off the next morning
The next day we did the EEG and spoke to prof Turnbull about how i was getting on with things we spoke about my balance as its getting worse! i stumble about like someone drunk but im finding walking with someone arms in arms. better ive always had bad balance because of the deafness but its got worse
As the years go on i worry about the future i dont want to be confined to a wheelchair 24/7 i like my independance.I know i have rachel to help me go out and about but its not the same as being on your own ie i always need someone with me for the balance part.
we have found a lovely place called kirkwood hospice which do a drop in centre and i can do my arts and crafts there which is what i wanted a little group to do cross sthiching or knitting with ill keep you posted on how how that goes
i am being referred back to PALS exercise group theat they do on wedsnesday;s so i can work on keeping my body moving rather than sitting at home all day
