Welcome To My Blog...
This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
today i found my mum emailing prof turnbull about that he wanted me to have an MRIs and mum was telling that how im not allowed to have them haha he forgot i have a cochlear implant like most people do.
she also wrote worried about how my forgetfulness is doing and she wondered if it was an effect of my near death experience when i stopped breathing for a few minutes she thought i might have a tiny bit of brain damage but prof turbull will look into that in our next meet up in april. he also wants me to have another EEG urgh i hated the last one i had last year those electric shocks to your hand but it was bearable
im also hoping to get some answers from the blood tests he took last year
im also having more trouble with my balance i seem to keep bumping into doors and cupboards il have to do some more exercises to help that .
