Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


19 April 2010

the waiting game...

I'm still waiting on information about the brow suspension op. The doc I saw at Newcastle will try and find someone who is my age who has had it done so I can talk to them about it and see how its improved their life. Having drooopy eyes alters your vision a bit, seeing double or getting headaches because you are straining them. I also got most of my blood tests back and echo and they were all fine except one blood test but the doc said that was normal in mitochondrial patients
They are also gona send me some leaflets on it through the post. I do want the op but I need to find everything about it first! Im in no rush
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