Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


8 April 2010

Cochlear wire


2 weeks ago, I was my cochlear implant was experiencing a few problems as when I woke up, it wouldnt switch straight on unless i fiddled with the cochlear implant wire, i thought it was just my batteries playing up so i changed them and the cochlear implant switched on. The next morning,, it did it again despite new batteries, i fiddled again with the wire and it came on. But this day, after my bath, it wouldn't switch on so i decided to investigate!

I took my cochlear implant apart and found this....
a frayed wire!

no wonder it hadn't been switching straight on! Luckily i had a spare! :)
I got a new spare from the cochlear implant centre and send the frayed wire to them as instructed. Thank god for spars! :)
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