Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


9 December 2014

wow time flies...

wow how time flies since i was diagnosed 10 years ago in 2004 it was this time of months when i was misdiagnosed with mystmeia  gravis and i still cant spell it! they started me on treatment on it thinking i had that i was so depressed over that christmas in 2003 thinking my life was over. it wasnt over at all but had to make a few life changes and some meds to keep my mito stable 
nowdays i dont think mito disease is NOT a death sentence its always the infections we catch that harms us and i can still live with  it. i have my family and carers and brilliant doctors that cant do enough for me and they make life easier.Thank you 
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