Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


31 December 2014

happy new year

a new year is brewing it has been good for me (apart from the anxiety) but over all its been good  i had a good holiday in south wales with my parents ive made new friends via my fb mito group which is going rather well i couldnt imagine how many people were gonna join but we have nearly 900 members all helping one another or just being there to know what we mito warriors  are going through. i shall leave it there happy new year and hope its a healthy 2015 for you all x
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