Welcome To My Blog...
This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
the lily foundation family weekend...
last month me and the parents went to the lily foundation family weekend and had a fabulous time i got to meet new families who have a loved one who is suffering with mitochondrial disease as well as meeting old faces too. There were lots of information on stalls that would help people with mitochondrial disease
last month me and the parents went to the lily foundation family weekend and had a fabulous time i got to meet new families who have a loved one who is suffering with mitochondrial disease as well as meeting old faces too. There were lots of information on stalls that would help people with mitochondrial disease 
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