Welcome To My Blog...
This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
wet room
Me and the family have opted for a wet room for me as my needs are becoming more common i find it hard to get off the toilet without grip bars and we are thinking of the future when it comes to bathing me we currently had a bath which i struggled to get out of so the wet room has taken over 2 weeks to do so we are lucky we have a 2nd toilet as the builders have been in bathroom! They have also given me a higher toilet to get off more easily when im having a mito attack pics to come later
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