2 weeks ago me and the parents went to newcastle's patient information day 2016 which they do every year its always interesting to get more information regarding mitochondrial disease and meet up with old and new friends who ive met via facebook!
it was at a hotel this time and felt quite posh as we had name tags round our necks with our names on which we have never done before so it was funny and i felt important! ha ha
this year i was interested in finding out more about the 3 parent IVF which involves taking the "disability" especially hereditary conditions such as mitochondria disease as maybe one day i might need should i want children.
i also met up with some friends who i contact via facebook and its good to see them i had brought my knitted bags for one of my friends faye who has Leigh's syndrome so she could sell them to raise money for a cure for mitochondira disease and also the lily foundation which i feel useful doing something rather just stay sitting at home all day doing nothing!
i do wish i could do more though but at least this way im doing something!
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