Welcome To My Blog...
This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
eye probs
Because of my eyes and cyst problems my eye doc has encouraged me to use a wheatbag on my eyes to soothe them and stop cysts from forming. We heat the wheatbag up and place it on my eyes til it cools. i also get antibiotic drops put in to keep the cysts away and also some eye drops to keep my eyes lubicated as my eye doc has told me that my eyes seem to dry out and sleep gets stuck in the tear ducts causing more problems for me!
my mum puts the drops in 6 times a day
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