Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


8 March 2012

sicky sweats...

I felt a bit sick this morning after i got up as I had been on the feed overnight for some silly reason i thought it was wednsday today instead of thursday so i thought my mum was at work so I took my own feed off and shuffled to the bathroom feeling really weak. I had to come downstairs with my tube still in because mum had left the sterile water downstairs so i shuffled back upstairs feeling really faint by now  I had a lie down and did some breathing exercises to get my heart rate slowdown again because it goes like the clappers when i have sweats from the feed. I feel all my back is wet from sweats so after a lie down for 10 mins i felt better and mum pops her head round the door and tells me its thursday because i was shocked to see her!  I usually spend the morning with no food at all to let my stomache settle down but i can have my cup of tea and relax now.
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