Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


14 November 2010

2nd eyebrow suspension part 2,,,

13th november,  i didnt have a good night sleep so i spent most of the night watching TV or walking about to keep my muscles moving. I had JUST drifted off about 6am but 10 mins later, the nurse woke me up to do my blood pressure!!! ohh i woke up with a headache so i had some paracetamol.
The doc came round just after my parents arrived at 8.30am. He told us what to expect and how the operation went well.  He took off my patch to reveal a black eye and lots of swellling. it was worse than the last op as that eye had more done to it. He checked my right eye too and was happy with it.
he told us the swelling would get worse as time goes on before it goes down and he couldnt determine what it would the eye would be like til it had gone down. After that, we were free to go home and i could recover.

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