Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


24 June 2010

The letter...

Got the letter from Newcastle from the eye doc explaining everything I already knew basically and when i read it, it gave me a few scary feelings. When he wrote I would experience bruising and swelling etc. i hate pain! and don't get me started with having a local for it! It's been in the running for 2 years now and I think this year may the year I finally go for it. JUST because I need it. I may not b looking forward to it but it has to be done!
the guy i have been writing to about the brow suspension will be having his op tomorrow. Im hoping he will tell me it doesnt hurt as much as it sounds! but ill wait til he gets back to me on it and then get the ball rolling. after all theres still 6 weeks to get all ready for it! ohh can u tell im freaking out about it??
Im sure ill be fine!
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