Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


24 October 2008

Worn out...

Since its half term next week at the school, I spent the last Friday there to help out. I was on reading duties today so every 5 minutes of reading with a pupil, they go back to class to get another pupil to read to me etc…

Sometimes I do the reading tasks in the classroom which can be a challenge as its noisy! I was in the staffroom today although there were still other teachers in there talking so I moved seats so that the pupil talk in to my LEFT ear because that’s which ear my cochlear implant is on therefore I hear the sounds better on that side in a noisy environment.

Hopefully, I’ll spend most of the week in bed coz I have been soooooooooo tired lately & keep dozing off!! I have been getting up early a lot lately what with volunteering and meeting friends! Not that I haven't enjoyed the volunteering and meeting my mates but I’m looking forward to a nice lie in!

1 comment:

Jennifer Bruno Conde said...

That's great that you are doing the volunteer work in the school. What a challenge to have students read to you! Hope you get a nice looooonnnnngggg rest! :-)