A journey of life with Deafness,Cochlear Implants and a mitochondrial condtion.
Welcome To My Blog...
This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
My Story
26 November 2014
xmas shopping...
today i went sxmas hopping with my helper friend which was good coz it was good to get out and do something for my mental health even if i dont like it much but it does me the world of good to get some fresh air even if its gloomy outside!
22 November 2014
getting there...
as my title says i am getting there and i hope il be back to my old self over xmas. its still so hard having anxiety though as no day is the same although i wish it was .i took a big step getting back to my self though and went xmas clothes shopping with my mum and dad and i have a nice outfit for xmas dayso thats one thing towards getting better.
18 November 2014
update...
i am to see a physiologist referred by my mental doctors to get down to the bottom of my anxiety i hope it helps
16 November 2014
20 September 2014
4 August 2014
28 May 2014
busy busy zzz...
sorry all for not updating ive been so busy! today my right eye has been watering really badly so i couldnt do my sewing. i opted to do my knitting instead im knitting some bags see how they turn out!! Early night for me after britains got talent
trolls...
i get so fed up of these "internet trolls" do they not have anything better to do with their lives other than upsetting people through a computer screen?? that makes them cowards!
im not about to step down for something i believe in just coz someone called me "ugly" "lazy!" "tired" "on drugs" i am NONE of those things im certainly not lazy! i go to gym once a week and try and hang out with my friends as much as they have free time from their jobs.
im not about to step down and let them win im not depressed or sad about my disease ive adapted to it and thats how i get on with my life!
im not about to step down for something i believe in just coz someone called me "ugly" "lazy!" "tired" "on drugs" i am NONE of those things im certainly not lazy! i go to gym once a week and try and hang out with my friends as much as they have free time from their jobs.
im not about to step down and let them win im not depressed or sad about my disease ive adapted to it and thats how i get on with my life!
25 May 2014
jumpy meds...
The meds im on at night time to help me sleep is making me a bit restless when i take it after 9pm. it makes me all sqiggly and writggling about! and i cant stop it!! i just need to do it and it mostly means i should get ready for sleep time!!
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