mitochondira awareness week

15th to 21st is Mitochondrial awareness week! 

 I want people to know that you probably know someone who has a Mito condition

there are so many different types such as diabetes  and strokes autism MS and many more!

This week is about raising awareness of it! as you know I talk about my own mitochondrial condition which is a rare type called Mitochondrial Multple DNA deletions and it affects people in different ways. I found out when I was 18 even though I went deaf at the age of 8 and no one knew why. Since finding out I have mito my life has changed a lot because its can be isolating with the fact that I couldn't cope with a job or going out with friends etc It also doesn't help that I am profoundly deaf from it which makes it harder to make friends. my confidence was beaten but over the years I have learnt to live with it and I can beat it! :)

I hope to pass this awareness on to bloggers and friends who read this blog because so many people suffer from it!

Gym...

O M G gym Is getting tougher I set my target of 30 mins on the treadmill but could only manage 15 mins before my legs and I was exhausted! But I will work my way up to it hopefully! I even went on my birthday coz I wanna get stronger! I went for an ice cream after it since it was a nice day. all in all it was a tiring day and couldn't wait for my bed!
THEN my mum decided to wake me up at 9 oclock to see if I wanted to go see nana in Middlesbrough... of course I love seeing my nana but then again I wanted to sleeeeeeep! at least I can have a longer lie in tomorrow! zzz...

Gym...

My neurologist Mr Turnbull wants me to carry on with gym and concentrate on sociable activities since everything else is doing well he wants me to do gym coz he doesn't want my muscles to seize up and so im also trying to meet new people through gym.

ive gone up to 11stone which is fine according to my dietician but she wants me to try and do more exercise and stick to 10stone so I need to lose some pounds

im starting off slow doing 15 mins on the treadmill and 10 mins on the cycle bike.
it might not sound like much not but il hopefully get better and start doing more and more as time goes on I only go on a Wednesday as I go with my carer Victoria which is good coz she spurs me on which is positive for me

heat wave!

Its been lovely weather here lately in UK but its a bit too much to take at times. Ever since I have put on weight up to 10st 13 pounds I find that I warm up more easily than I used to when I weighed less so the heat wave we are having is sending sweat everywhere on my body! When I weighed 8stone I could tolerate the heat easily but now I want rain and coolness in the air!!! I dread how im gonna sleep tonight coz these last few days ive had a touch of hayfever I think as I keep sneezing! im trying to keep as cool as possible having two showers a day and lots to drink!

dietician appointment...

yesterday i had the dietican come round to the house and we discussed my diet, last time i saw her she was trying to get me to put  ON weight because i was 9stone now im 11stone she wants me to lose a stone and stick to the 10 stone! i never know what the hell she awnts from me! first she wanted me to put on weight now she wants me to lose it i look healthy the way i am now but she argues that she doesnt want me to put any more pressure on my hips as it would affect my walking.  so im gonna have to ditch the sweets and crisps....wish me luck!

3 months on...

3 months on from having my operation on my eyelid it has healed a lot since the last pic its like i never had the cyst! it may be still pink but its better than the cyst!

update on newcastle trip

Yesterday was my yearly trip to newcastle and when we got there we went straight for the EMG which was a test to test my nerves i had never had one before so i didnt know what to expect but i had  friends who had one before tell me what they are like and that i should be fine! I found most of it uncomfortable and the needle under my knee was the painful twich! We will know the results of the test in 2 weeks.

We then went to see Doc Turbull and his registar Victoria Nesbitt who did some usual tests on me  and also the dietitian who went through my diet and was happy with my weight gain although she would like me to eat more fruit and veg! haha  
All in all they were all happy with my progress and dont want to see me for a year!
We then we down to see the eye doctor who did the operation on my eyelid and he took a look at the scar of the eyelid and he was happy with how it was healing and there was no need to have a skin graft! and he said he will see me in a years time! Below is a picture of my eye as it still healing

healing well...

my eye is looking very well it will take some time to heal but its looking good so far as my doc says :)

slowily healing...

Here is the latest pic of my eyelid after the op 3 weeks on

2 weedks on...

2 weeks on we travelled back to newcastle again to get the results of how the operation on my eyelid went. well he took off my patch and had a good look at it. he told me he was happy with how it was healing and there was no need for a skin graft! i was happy to hear about that!

the doc put on another pad on my eye just to keep it healing it will slow but it will worth it!