apoligies...

Apoligies for not writing on my blog for a while. I've been recuperating still from my viral infection.  Yes, i STILL have it! lol
I have been given more meds from my GP with the help from Newcastle docs via phone to try and get over this.  Ive been having a lot of sleepless nights therefore not been up to doing much except want to stay in bed all day because the  viral infection has been messing with my PEG feed too making me feel very ill. i just hope in time i will begin to feel better.

3 different medications, 2 visits to the doc and lots of coughs...

This has been going on far too long now! i feel im maybe starting to get somewehre now even though im exhuasted and tired from sleepless nights and lots and lots of coughing!

called my GP several times who has prescribed me 3 different medicenes and im now on the 3rd see if it helps.

ont he 2nd medicene prescribed we were told we could put it through my PEG once it has dissolved but it blocked it. we had to call out our district nurse who had never seen a button PEG like i have before.   she had to call my hospital in newcastle before attempting to change the button herself because my PEG nurse was busy elsewhere. Newcastle talked her through it and she almost struggled to get it in but it finally popped in! i was like thank bloody hell for that otherwise id have to stick with a catheter tube in there til the PEG nurse came.  Now the new peg button was in, she checked to see if it was unblocked and i could continue my peg feed since ive been ill and have needed it more than usual. I feel very tired and sinus are affected by sore eyes.

hopefully the 3rd time lucky medicene will do the trick! watch this space!

Physio...

I had the physiotherapist over yesterday for a reivew on how they can help me. We had a long chat about my muscles and how/where they ache/stick and the history of my mitochondrial condition.

She gave me some 3 excercises to try once a day to build up my strength in my muscles. She said it wasnt about being flexible or fast but to try and strength up the tummy core parts so it can help me to use my back and the bottom half of my body more because the physio told me im using more of my upperbody to get up and down etc or do things. she was also concerned about the way i walk because of my feet when they are relaxed sort of flop forward rather than stay upright so she hopes the exercises will help that.

other thatn that i found out im suffering from a viral infection and the doc doesnt have a time stamp on how long it will be before i get better. he gave me medicene for the mucus thats sticking in my throat. i also emailed Newcastle to let them know and they replied back saying the GP told me all the right thingjs and i just have to wait it out and continue my feeds over night.

Touch phones,...

My phone is falling apart! oh nooo. its been a while since i lookied for phones since ive had my trusty phone for about 2 and half years and now the keypad is falling off!! too much texting?

Anyway, i looked at the latest phones and most of them seem to be touch screen kinda phones and ive never really been a fan of them! i want ny phone to look like a phone! I ususally went for sony erricson for the way it sounded clear when i take a call or cal someone.But now even sony erricsons seem to be going into touch screens too1 I worry aboutt touch screen side of things because of my cochlear implant.  ive never touched touch screens and then touched my cochlear implant but if they are anything like tv screens i worry they will scramble my MAP so ive sent an email to the cochlear implant centre to see if they are safe to use with cochlear implants.  if they are ok, i may consider one and enlist the help of my brother to help me look for one! anyway apart from that the left eye still feels strange and i keep closing it to foc us but ill ask about that at my next hospital review!

Dissolve, stitches, dissolve...

My eyes seem to be getting there now. the right is fully healed but the left still has some tiny stitches that are refusing to budge and dissolve! They arent sore or anything but wondering why its taking so long for them to come out. Even the local nurse didnt want to attempt to take them out!

Last night i was awake half the night with a very sore chest after all the coughing ive been doing, it was so bad it felt like heartburn and didnt go til the monring when i had some paracetamol but at least i had some sleep.

im not sure how im feeling about how the eyes look so far. yes they are open and im seeing ok (although still closing one eye to focus) theres not any double vision unless im tired and they tend to get achey easily.

i havet had open eyes since i was a kid, even when i was a teen i never really noticed that my eyelids were over my pupils til a doctor pointed it all out at 18. im not too bothered about how they look anyway. the op was required to keep them open rather than make them look better but im happy with them anyway, i can see. i can hear (with the ci) and am happy.

Fed up...

I am fed up of feeling ill now, over christmas and new year I have caught every bug going and i havent even been anywhere apart from one trip to the docs!  My brother has given me the latest bug and i have a killer sore throat feel tired all the time because I cant sleep! its so annoying.  I have'nt had a decent nights sleep since the beginning of december i could cry at times!

Ive had non stop sniffers, vapour rubs, head coolers but Im thankful I had the flu jab and its not gonna get any worse than this?!

ive resorted to writing on notepads to "talk" since its hurts too much to actually talk.

it reminded me of being back at school when i lost my first cochlear implant and i relied heavily on written notes to help me through my GCSE's.

On another note, my ledt eye is getting there, its still sore due to the lack of sleep and the longer recovery time due to the complicated op so im on my 3rd batch of anitbiotic drops but its starting to feel more "normal"

I've taken many a paracetamol over it over the headaches and the pain i got from it but now hopefully its all over.

Happy new year...

Happy 2011 to you all in the blog world.

I dont have many resolutions for this year but just hope it will be a good and healthy year!

I started off new years with a bloody cold but am feeling a bit better!

The eye ops are officially over (i hope!) just have to get used to them!! The left eye is the worst. The rght eye has recovered well although my left is "seeing" a bit funny with blurryness or double vision but then again it was a complicated eye to work on my doc said so we will see what the new year brings

Merry christmas...

i just wanted to wish everyone a Merry christmas! i hope everyone has a lovely time!
i was hoping to go to my friends house tonight but full of cold and my ear infection is back  in right non cochlear ear :(
anyway everyone have a lovely xmas!

Day after eyelid adustment...

i had trouble closing my eye at first so i was worried if i would sleep! but i acutally got the best sleep id had in ages! it also helped getting up at 5am the previous day!

i woke up to a sore eye again so i took some more paracetamol this morning. it hurts to blink wholey with all of the eyelid because the eyebrow is sore too. but paracetamol is helping! I was talking with my mum this morning and she told me that my eye surgeon had seen more of me as a brow suspension patient than any other because normally he just does one adjustment.  WIth me hes done both brow suspensions on both eyeiids and adjustments on both too. it made me think how bad must my eyes have been and how weak my eyelids must have been. it upset me a little.

 
on the right- a pic of my eye as it is at the moment.

left eyelid adjustment...

Yesterday was ONE LONG DAY! we had to get up at 5am to drive to newcastle for 8:30am. I didnt particulary have a good nights sleep the night before even though i want to bed around 9pm ( which is rare for me!!) so its no surprise i got up feeling totally shattered and not feeling the best! I didnt have any breakfast since i thought i would be sick in the car! but i had my feed through the night so I was ok to miss breakfast. It was bloody freezing in the car too being 5am!

I made it to newcastle without being sick woo! We waited about half hour for the doc to see us. I still had a horrible looking sore scar on my eyelid from when he operated the brow suspension, he told us that it would be fine and doesnt need anything doing to it and it will heal on its own .I was also told i would be going to theatre at half 10 as he had moved us up the list because an adjustment doesnt take that long and we had to drive back home.

 Me and dad went down to theatre with me to hold my hand (mum never comes to theatre with me coz shes scared of needles ha!)  i must admit ive gotten used to locals after having them stabbed in my eyellid and in my head! it kills but not for long! i didnt expect anything from this as it was just an adjustment but i was a little worried as my scar on the eyelid hadnt healed and was still sore. I was right! it did hurt a bit but it was nothing compared to when he did the left eye brow suspension!! At least they were kind about my concerns about my cochlear implant in theatre. Some docs n nurses are not so friendly about that and just want to get on with the job which annoys me.

I was a bit concerned when he put a patch on my eye because i didnt have one on my right eye the last time! but he said he was happy with how it went and i was to take my patch off after 2 hrs or so. i left it til i got home from newcastle.
The patch was to apply pressure and keep the eyelid shut to avoid bruising. I had some paracetamol as soon as i got home because i was in some pain.