Last weekend I travelled to Newcastle and stayed in a hotel to do the RRM2B study as paid for by the lily foundation or research. It was a busy two days of testa. Before hand I wore a watch which recorded all my heart n sleep patterns and also a stool sample ( which wasn’t the easiest task to do haha) ands my mum had to note down every poo and what I ate 4 weeks before the Study in Newcastle
I arrived at the hospital with my parents and met the doctors.we went through the ins and outs of the test and consenting to do the study. Of course I couldn’t have the MRI scan because of my cochlear implant which was fine.
I had TEN vials of blood and although they were concentrated about my arms and the muscle mass. My right arm is bigger than my left .
We then sis some exercise an lot of walking with Zimmer frame (my walking hasn’t been the same since I was in intensive care last year) we did normal walking and fast walking to compare the two.
I then was given a mental test on a timer
I was then asked to fast overnight and at the hospital did a urine test. That was the end of the tests and the docs will do the tests again next year ,
Fo now I earned a good rest!
